WANDA (World Alliance of Neuromuscular Diseases Associations) SESSION
Wednesday, 21st July
Organizer:
Y. Poortman, Vice President of WANDA (ypoortman@zonnet.nl)
WANDA delegates:
Payment received by March 31, 2010: € 320
Payment received after March 31, 2010: € 700
One-day registration (Wednesday 21st July): € 100
| h. 09.00 - 17.00 |
|
WANDA/ICNMD Plenary Session (Hall F5)
Chairs: Anna Ambrosini (Italy), Allan Bretag (Australia), Ysbrand Poortman
(Netherlands) |
|
| h. 09.00- 10.30 |
|
Worldwide Support for Treatment and Prevention for NMDs
Reports from WANDA Regional representatives |
|
| h. 10.30 - 10.50 |
|
Coffee break |
|
| h. 10.50 - 13.00 |
|
The Mediterranean situation: opportunities and barriers
Invited presentation
Forum: The needs in the Mediterranean area |
|
| h. 13.00 - 14.00 |
|
Lunch |
|
| h. 14.00 - 15.00 |
|
From national activities to a global joint venture.
Tools |
|
| h. 15.00 - 17.00 |
|
WANDA and ICNMD Joint session - PARTNERING RESEARCH AND
SOCIETY
WANDA - The Roadmap to Treatment
TREAT-NMD - Achievements and future perspectives
ENMC - A platform of Empowered Patient Organisation
AOMC - Education and Training |
|
| h. 17.00 - 17.15 |
|
Coffee break |
|
| h. 17.15 - 19.00 |
|
WANDA - assembly; business meeting (Room: Red Hall)
Summary of ICNMD highlights
Fundraising by Telethon
Reports from National NMDAS |
|
If needed, the WANDA Assembly will continue
Thursday 22nd 08.00-10.00 in Room: Blue Hall
|
